# Unpaid care as the hidden delivery system

Source: https://onco.cc/bottlenecks/da-bn-caregiver-load/  
OnCo record `da-bn-caregiver-load` (Bottleneck). Data CC BY-NC 4.0, attribute "Data from OnCo (onco.cc)"; commercial use needs a licence.

## TL;DR

Most day-to-day dementia care is unpaid. Medicines and scans fail in practice if one person is carrying every task alone.

## Summary

Respite, training, and a named navigator are delivery infrastructure. They are often treated as extras.

## Fields

- Kind: Bottleneck
- Last checked: 2026-09-21
- Tags: dementia-atlas
- Stage: access-delivery
- Severity: critical
- Metrics: Public caregiver resource: Alzheimers.gov caregiver pages (NIA / Alzheimers.gov)
- Causes: Care work is unpaid and gendered.; Benefits are hard to find.; Clinics are organised around encounters, not households.

## Sources

- CDC caregiving: https://www.cdc.gov/caregiving/index.html

## Connected records

- fronts: [Care delivery](https://onco.cc/fronts/da-front-care-delivery/)
- technologies: [Dementia care navigation](https://onco.cc/technologies/da-tech-care-navigation/)
- ideas: [Make carer outcomes a primary trial endpoint](https://onco.cc/ideas/da-idea-carer-outcome-primary/)

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JSON: https://onco.cc/api/v1/entities/da-bn-caregiver-load.json